IntroductionInvolving patients and carers in the development of blended collaborative care (BCC) interventions for multimorbid heart failure (HF) patients is recommended but rarely practised, and research on the patient perspective is scarce. The aim of this study is to investigate patients’ and carers' care-related needs and preferences to better customize a novel international BCC intervention.MethodsA qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created.ResultsData from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support.DiscussionThis is the first international qualitative study on patients' and carers' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing “one size fits all” interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).

中文翻译：

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多病性心力衰竭患者及其护理人员的需求：定性访谈研究和创建角色作为混合协作护理干预的基础

简介建议让患者和护理人员参与针对多病态心力衰竭（HF）患者的混合协作护理（BCC）干预措施的制定，但很少实践，而且从患者角度进行的研究也很少。本研究的目的是调查患者和护理人员的护理相关需求和偏好，以更好地定制新颖的国际 BCC 干预措施。方法采用框架分析的定性研究设计。该研究是根据 EQUATOR 定性研究报告标准 (SRQR) 进行的。年龄在 65 岁以上、患有心力衰竭和至少两种其他身体疾病的患者及其护理人员在德国、意大利和丹麦完成了半结构化访谈。根据这些访谈，创建了角色（患者和护理人员的原型资料）。结果分析了 25 名患者和 17 名护理人员的访谈数据。最初，确定了七个针对具体国家的角色，并不断缩小到最后一组 3 个角色：(a) 需要并想要支持的人，(b) 已经接受 HF 情况并在以下情况时伸出援手的人：必要的，以及 (c) 感到被医疗保健系统忽视的人。认同最后一个角色的护理人员表现出高水平的心理压力和对支持的高度需求。讨论这是第一个关于使用角色创建的 BCC 干预的患者和护理人员需求的国际定性研究。在三个欧洲国家，采访数据被用来开发三种截然不同的角色。结果表明，BCC 干预措施不应提供“一刀切”的干预措施，而是应根据患者和护理人员的个体需求提供不同的方法。这些角色将作为开发新型 BCC 干预措施的基础，作为欧盟项目 ESCAPE（评估以患者为中心的生物社会混合协作护理路径，用于治疗多病老年患者）的一部分。